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Spoon Theory:  Sharing Perspective when Illness becomes Disability

photo credit: cogdogblog via photopin cc
photo credit: cogdogblog via photopin cc

I recently lost a friend to a genetic illness.  He was 28.  His illness profoundly affected his everyday life.  Coping with unexpected disability is overwhelming for the person but also for the people around them.

The Spoonies community and Spoon Theory helped.

Spoonies is an online support group for young people suffering from chronic illness.  It is based on the Spoon Theory.  Christine Miserandino, founder of butyoudon’tlooksick.com, came up with her Spoon Theory to help describe her experience of living with Lupus to a friend.

For the best experience I recommend reading the full spoon story.

Spoon Theory is a metaphor for what it’s like to live with chronic illness that leads to disability.  If you are healthy, you have unlimited spoons.  Sick people have a limited number of spoons and need to measure them out carefully to make sure they have enough.  Things like cooking a meal, brushing your teeth, or meeting a friend for coffee all count as spoons.  We should be careful about our spoons because we only have so many.

This post is dedicated to my friend Alex.  I’m grateful for all the ‘spoons’ you shared with me.  Till next we meet, great heart.   I miss you.  


Inclusion Blog Post

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